Thursday, March 29, 2012

One Year Post-Op


Video taken by Bill of Mahaela's heart

One year ago today, Mahaela had her third surgery to correct her congenital heart defect.  I am reminded of God's mercy to her for a full recovery. 
Bill is working today (he is an anesthesiologist) with the surgeon who performed Mahaela's surgery.  Our surgeon "reminded" him that we have an amazing little girl!  Boy, do we know it! 
As much as I thought that those 18 days in the hospital were such a blurr, I remember so much, with such clarity.  I remember how M. sounded when she was completely dehydrated...like the softest, squeakiest baby bird.  She looked bad, pathetic...but it was all part of the process to go through to heal her.  So many details etched in my memory.  I'm sure they will fade, but today I am taken back to that day.  This day, a year ago was filled with so much support and love and prayer from our family and friends.  It was really a special day--to know how cared for we are. 
1-2 days post op


Very dehydrated about 4-5 days post op.  Trying to decrease the fluid load to her lungs. 


feeling so much better


ready to ride out of there!

I won't relive the whole day...I blogged about the experience a year ago.  She has had a great year of health since then.  A couple ear infections, maybe a cold, and a couple fevers...all the normal stuff, but so normal!
I am reminded how blessed we are and how I can never take that for granted when I think of the little 7 year old staying next to our room in the hospital.  She was sick, just sick, with a similar defect as Mahaela.  Bill talked to the family a bit.  The little girl went on to be transferred to another hospital to be placed on the heart donor list...I never heard if she got a heart in time...Praying that she did and that she is doing well now. 
Thank you to all our friends and family for praying for Mahaela when she really needed it.

On an upbeat note...a couple stories:
On vacation last week, we were in a deli with the TV playing the show where the guy tries all these gross foods from around the world--Bizarre Foods (on the Travel Channel.)  He was eating rat, every bit of rat, in some SE Asian country.  I said to Mahaela, "I'm glad I live in America."  Without her even knowing what I was talking about or why I said that, and without missing a beat she said, "Me, too!"  Just made me smile.

Today I let the elastic out on her adjustable waist jeans.  When I picked her up from preschool she said her pants were falling down all day.  I asked what she did, if she had to keep hiking them up.  She said her teacher just made her go to the bathroom.  I asked if it was because her crack was showing??  She said no, to wash her hands.  Then she showed me how she had an itch and how easily she could slip her hand down the back of her pants.  Oh, the joys of being a preschool teacher!  (and how embarrassing!!--although Mahaela didn't seem to mind being called out for this poor judgment!)
TaDa!
Near Washington Monument in DC 3/22/12

Coming up soon...next week Mahaela has a check up at her cardiologist and possibly an echo.
Also, I talked to an attorney about re-adoption this week and will move forward with that...just to get that state issued certificate of foreign birth.  Probably have our court hearing this summer...think I have a new nephew that should join us...wouldn't that be fun?!
I know this may seem shocking, but I have considered changing the spelling of her name.  I'm so disappointed that no one pronounces it correctly.  But in the end, I don't think I have the guts to do it and I like how it is spelled.  Why do people butcher her name so badly??  MAHAELA...it obeys all the laws of phonics, doesn't it???  

Sunday, March 4, 2012

It's been too long...

Mahaela as a baby



This is a long post, but I have a long story to share. 
I have no real excuse (as to why my last post was 3 months ago--yikes)...except life gets in the way!  I know my last entry was before Christmas, but even in the new year, there just isn't enough time for me to keep up with everything, including blogging.  If I'm blogging, be assured that something else in my life or house is falling apart (and for sure there are dirty dishes in the sink!) 
I re-read the previous post I made and watched the Gotcha Day videos again.  I am even more touched by them now than I was a few months ago...and there's a reason for that...Let me tell you about it.

This story starts back several weeks ago.  I received a Facebook friend request from the head nurse (Toncheva, as M. calls her) at Mahaela's orphanage.  I accepted it.  She doesn't speak much English, but I knew she would appreciate seeing pictures, and someone may help her translate as well.  That night, Bill said something while thumbing through his Facebook about "M. Toncheva" requesting to be friends with him.  He accepted the friend request and then also mentioned another name that I wasn't familiar with...but it piqued my interest.  When he said the name, I recalled getting the same request, but many weeks prior.  I not only didn't accept the request, I deleted it completely.  When he said the name, I immediately went to Facebook to look it up.  It seemed to be a Bulgarian name.  When I pulled up the name, various profiles popped up.  One of the profiles had this:

 
a photo of Mahaela as her profile picture!!!
My chin hit the floor.  I didn't recognize this lady, but after she accepted my friend request, I looked through her friend list and saw a handful of faces that I did recognized as caregivers.  I asked her if it was Mahaela in her profile picture (there was no question) and if we had met before.  That was the beginning of some wonderful dialog and a friendship that I will cherish.  That's how I met Petia.
 
Petia is the daughter of one of Mahaela's caregivers.  Petia no longer lives in the town of Mahaela's orphanage, but she would go "home" to visit on weekends and holidays and would talk to her mom and Mahaela very often.  She said M. would get on the phone and say "Good morning, Pete."
I asked if I could share some of our conversations on this blog...she doesn't mind, so I will share.  I didn't want Petia to feel that I was just posting our private conversations, but it just reveals so much to me about Mahaela's three years before we knew her.  So with Petia's permission, I want to share some of her words.  Some are direct quotes as she wrote them...she knows English very well, but some phrases were a bit "off."  Many of them I will leave as she wrote them, because I can just "hear" her saying it that way.

Petia: 
"I will tell you everything I know about her while she was with us...just ask.  Please kiss her from all of us."
"I want and not just me (all of my family and caregivers) to say THANK YOU, that you loved her so much.  Every day I thank God for everything you have done and will do for her and pray whole family is healthy and happy!

Petia knew M. from the time she was a baby..."she was probably a month when I saw her for the first time.  We were with my dad and my sister and mom showed her to us...believe me, Shelley, that was one of the most emotional moments in my life.  Dad wanted to hold her and she wept, from inability to catch her breath, her face was blue:( then we fall in love to this small kid:)" 
My mind just pictures my tiny Mahaela at one month old...brown eyes, soft wavy hair, distinct little nose, fresh scars on her chest.  She would have been blue when she cried due to her heart defect.  She went to the hospital in Sofia just after her birth and had surgery within her first week.  She came to the orphanage in her birth town after being in the hospital about 4 weeks.
"All we were very devoted to her...because she was our "SUNNY GIRL." 
I love that-- "sunny girl." 
"It was very difficult when she went .  At the beginning of each day we waited for information- how is she, is she crying, how was she adapting at home...everything about what a parent thinks for their own children.  Now it is a little easier...but we did not forget:)"
I had always imagined what it was like for them when M. left and what it was like for my 3 year old.  But hearing these words, I could really feel the pain of their loss.
"I am glad that our small and brave child is happy, healthy and surrounded by love with you."
Brave...I've heard that a lot.  The way she left was only due to the fact that they had given her the courage to leave...to be brave.
I asked Petia so many questions...some trivial, but things that I often wondered about...things that we had already made up answers about in our minds--many of our answers being inaccurate.
Little facts:  Mahaela was taken to the hospital for her surgeries and for other procedures and illnesses, but no one was able to stay with her.  I understand why, but it breaks my heart to think of her alone in a hospital crib for days...I like to believe that she had awesome nurses who loved on her and gave her great care. 
I asked Petia if it seemed that they became so attached to M. because she was sick.  "In the orphanage, it has happened to watch a sick child, but it was something special in her and she just took us mind at a glance."  I LOVE that..."mind at a glance."  I think it's a phrase like "she stole our hearts."  The kind of phrase that doesn't translate literally, but I completely get it.  I get it because she also "took us mind at a glance." 
Petia described what it was like when she left.  She described how her dad saw us in the car as we turned the corner and left Haskovo.  I haven't confirmed it, but I believe he is the man sitting in the car on the day M. left.  M. approached the car as if she was familiar with him, but he said something...maybe "ciao" and directed her to the car we were leaving in. 
I could not have been as strong as they were...in fact, they were all very brave when she left.  I was the one crying! 
She said not just the caregivers fell in love with M., but "the members of their families as much fell in love with this child.  For all of us it was hard to say "no" when she asked or prayed (begged) for something:)"
"Actually, I can not explain how we felt when you left...a part of us just gone.  But all know that you are the best choice for her, because you loved her so much..."
She described Mahaela like this: "she's just a charismatic child and anyone who see her fall in love!"

I can't say enough how precious these words are to me (and who doesn't love to hear great things about their child.)  I'm so grateful for every bit of information and photos we have been given.  Petia sent us some photos of M. as an infant and her first birthday celebration.  It just helps to fill in holes...a window to a time that we can never fully know. 
I have thought so much of how attached Mahaela was with her caregivers and how attached they were with her.  It is the best gift given to us and Mahaela.  It created the framework in her heart that allows us to bond and attach to Mahaela as much as we have.  That can't be replaced.  I do realize that this is not the norm in adoption.  It is not what we expected Mahaela's story to be coming from an Eastern European orphanage.  But, it is her story.  I'm not naive enough to think that this care will erase all the questions she will have in the future or her possible feelings of abandonment as she learns her story, but her experience in the orphanage gave her the best possible launch.

"Mahaela deserves to be loved and make people around her glad with her smile and energy."...and she does make us "glad"...for so many reasons, she makes us "GLAD."

15 months home today and still so much to be thankful for.  All praise and thanks to my Father in heaven who has blessed us with more than we could have asked or thought.

And that's the end to my long post...
Thank you Petia and all of the special caregivers in Mahaela's life